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Assessing Psychosocial Variables
A Tool for Diabetes Educators
Kelly L. Fisher, PhD, RN
From the University of Massachusetts Lowell.
Correspondence to Kelly L. Fisher, PhD, RN, 14 Innisfree Drive, Haverhill, MA
01832.
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Abstract
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The purpose of this article is to share an educational strategy or tool
that is relevant for use in patient and professional diabetes education. The
tool offers an opportunity for diabetes educators to screen for psychosocial
variables such as depression or emotional distress. A systematic review of the
literature was conducted to identify psychological variables that have an
impact on individuals living with diabetes and their ability to self-manage
their disease. The literature revealed that both depression and emotional
distress related to diabetes was experienced by individuals with diabetes
along with those individuals who were unable to self-management their disease.
The Accu-Check Interview is a computer software program that may assist
diabetes educators to provide diabetes education. Use of the Accu-Check
Interview software program has been implemented at various sites including the
Joslin Clinic (Boston, Mass), Baystate Medical Center (Springfield, Mass), and
Emerson Hospital (Concord, Mass). The Diabetes Self Care Profile is a
Web-based version of the Accu-Check Interview and can be accessed as a
demonstration in English and Spanish. These tools allow diabetes educators to
screen for psychosocial variables and address issues with individuals while
using a motivational interviewing approach.
In the face of unending and often burdensome regimen care requirements,
many individuals with type 2 diabetes become overwhelmed by the frustrations
of the regimens, constant reminders, and daily disease-related necessary
adjustments.1 The
diagnosis of diabetes, symptoms, and the strict treatment regimens can each be
a source of much psychological distress (eg, anxiety and depression) for the
patient.2
Researchers have found that regardless of gender and ethnic background, both
men and women reported that stress negatively affected their ability to adhere
to their diabetes regimen. While a number of researchers have suggested a link
between psychosocial factors and the onset of diabetes
mellitus,3,4
studies of naturally occurring life stress have repeatedly indicated a
positive association between major life stressors and poor diabetic
functioning.5 Most
of the attention regarding life stressors has been given to the potential
influence of major stressful life events (eg, divorce, death of significant
family member) and has not included emotional distress, daily life stressors,
and psychological
problems.6 In a
study conducted of 184 individuals with type 2 diabetes, approximately 25% of
the variance in self-care behaviors can be explained by psychosocial variables
(eg, knowledge, stress, depression, anxiety, health beliefs, and social
support) and demographic
variables.7
Preliminary research has linked a potential relationship between the onset of
secondary complications of diabetes and psychological distress, self-blame,
and depression.8
Depression and Diabetes
Depression, an antecedent in diabetes, is equally prevalent in the United
States, with estimates of approximately 3% of men and 5% to 9% of women having
clinical
depression.9 Current
studies suggest that comorbid depression is more prevalent in individuals with
diabetes than in other primary care
patients.10 There
is evidence that when depression occurs in individuals with diabetes, it is
associated with poor metabolic control, poor diet and adherence to medication
regimen, and decreased quality of
life.11-13
Depression is recognized as a mood state, clinical syndrome, and psychiatric
condition.14 A
depressed mood may include some or all of the following symptoms: sadness,
lack of energy, memory loss, boredom, empty life, hopelessness, worthlessness,
helplessness, and loss of social
activity.15
Individuals with diabetes are twice as likely to have depression. Younger
adults (<65 years), women, and unmarried individuals with diabetes are more
likely to have
depression.16 In
the literature on older adults (>65 years), similar findings were presented
that this group was particularly susceptible to comorbid depression compared
to age-matched controls without
diabetes.17 Studies
have reported that in the complex adjustment to life with diabetes, many older
adults report feelings of frustration and of being defeated. Adjusting to
diabetes has been associated with specific emotional distress that measures a
wide range of feelings related to living with diabetes and its treatment,
including guilt, anger, depressed mood, worry, and
fear.18 It is
presumed that emotional distress, as represented by the presence of depression
and/or poor coping skills, may be linked to poor adherence with the self-care
regimen.19
Diabetes Educators' Role
Depression and diabetes-related emotional distress are psychosocial factors
that need to be addressed by diabetes educators. Given the demand and impact
these factors have on individuals with diabetes as well as their families,
diabetes educators are responsible for conducting a complete psychosocial
assessment to help identify an effective plan of action to enhance
self-management and lower costs of diabetes
care.20 A
user-friendly computer program, Accu-Check Interview, has been designed as a
tool to assist educators in assessing a patient's level of psychosocial
risk.
Accu-Check Interview as a Tool
The Accu-Check Interview is a computer software program designed to enable
the provider and patient to sit down together to provide diabetes education.
The program is provided on a CD-ROM and is accompanied by a manual for health
care providers. The software program is based on motivational interviewing, a
behavior-change counseling technique that is capable of identifying 2 key
dimensions influencing a patient's readiness to make changes in
self-care.21 The
first key dimension is the patient's own perceptions, preferences, perceived
obstacles, and concerns. The second key dimension is self-efficacy, a
patient's confidence level to make the changes if he or she decides to do
so.22
The first step to initiate the program into a diabetes counseling session
is for the patient to complete the Accu-Check Interview questionnaire by
either using a computer or answering verbally as the questions are read by the
educator and documented into the Accu-Check computer software program at the
beginning of the session. The questionnaire provides 7 self-care options in
the assessment phase of the visit, including blood glucose monitoring, diet
and food, hypoglycemia, exercise, tobacco use, a topic of the patient's
choice, or "opt-out." This process takes about 10 minutes to
complete; a 1-page assessment report is then printed and used for
self-management discussion with the diabetes educator.
The report is organized in a simple 1-page layout that identifies key
issues using 2 brief summaries and 4 traffic light icons that highlight the
action areas. The traffic lights are color coded green (no problem present),
yellow (moderate problem present), and red (severe problem present). The
traffic lights provide summaries for these 4 areas by indicating a brightness
in the green, yellow, or red color: overall diabetes-related emotional
distress, presence of depression, presence of hypoglycemia, and nicotine
dependence. Below the 4 traffic light icons are 3 summary panels giving
details on the patient's identified barriers to diabetes self-care management,
level of emotional distress related to diabetes, and specific symptoms of
depression experienced by the individual. In the first section, the panel
provides a rating of low to high confidence level in making a health behavior
change for a selected topic (eg, food and eating) that can later be addressed
in a counseling session. The Diabetes Emotional Distress section is the rating
of the individual's overall experience in adjusting to diabetes and includes
an action section for the educator to see what specific areas to address where
the most emotional distress is felt. Last, the depression screen will identify
whether the patient is experiencing no depression, probable subclinical
depression, or probable depression. The action section will state 1 of the
depression options such as to make a suggestion for referral for treatment.
The top section of the patient report includes demographic information,
self-reported blood glucose monitoring, diabetes treatment, frequency of
hypoglycemia, and whether or not the patient is a smoker. The accompanying
manual provided for the Accu-Check Interview can assist the educator in
interpreting the patient's report and in offering suggestions on how to
counsel the individual in response to their identified concerns. For example,
a barrier associated with food and eating states, "Eat just because food
is there." Suggestions to incorporate might include "help patient
gain an increase in awareness and control the cues to unwanted eating,"
"suggest a diary to keep track of all eating for a few days,"
"place food out of sight," or "explore alternative
activities to divert attention from
eating."22
Another barrier is the patient identifying, "I feel hopeless because
I have tried and failed so many times." Suggestions to incorporate might
include the following: use open-ended questions to encourage the patient to
talk, identify past occasions when the patient was successful, and reinforce
that all people have setbacks while making
changes.22
Accu-Check Interview is just a start to exploring patient perceptions of
self-care options and helping them find out what is workable or of interest to
them by using a motivational interviewing style that differs from the
traditional "advice-giving" counseling approach to behavior
change. This program can be used for both initial comprehensive visits and
follow-up education counseling sessions with patients. Overall, the Accu-Check
Interview is a useful tool for diabetes educators to detect emotional distress
or depression that can seriously undermine the individual's ability to manage
his or her diabetes.
Motivational Interviewing: Patient-Centered Counseling Approach
The software program is based on motivational interviewing, a
behavior-change counseling technique that is a patient-centered counseling
style. Motivational interviewing principles and techniques are drawn from
models of behavior change theory and were described fully by Miller and
Rollnick.21 The
motivational interviewing approach used in application of the Accu-Check
Interview achieves the goal of helping individuals think about and verbally
express their own views while overcoming their own barriers to change. The
tone of the educational counseling session is nonjudgmental, empathetic, and
encouraging within a nonconfrontational and supportive environment. The
educator should rely on his or her ability for reflective listening and
provide positive affirmations rather than advice giving or persuasion. An
important element in using the motivational interviewing approach is to
suppress the instinct to respond with direct questions or advice until the
individual has an understanding of the situation or makes his or her own
suggestions for overcoming obstacles for change. The core motivational
techniques in addition to reflective listening are rolling with resistance,
agenda setting, and eliciting self-motivational statements or change talk by
the
individual.21,23
This approach reduces a patient's defensiveness, encourages participation in
deciding what behavior to talk about, and assists in motivating the individual
to have a greater self-commitment to behavior change. The Accu-Check patient
report is used during a motivational interviewing patient-centered counseling
session for a quick visual of summaries and feedback so the educator can focus
specifically on areas in which the patient has moderate or severe problematic
responses to the different categories.
The Accu-Check Interview has a Web-based version named the Diabetes Self
Care Profile (DSCP) that can be accessed as a demonstration in both English
and Spanish. The DSCP includes a patient assessment of current diabetes
self-care behaviors (diet, exercise, diabetes mediations, blood glucose
monitoring) with a brief set of 10 questions. This Web site includes the
identification of one self-care topic to work on and specific barriers the
patient faces in the area of self-care (eg, for exercise, "bad weather
or outside conditions"). Similar to the Accu-Check Interview CD-ROM, the
program assesses 6 known psychosocial problem areas that can hinder diabetes
self-care (ie, major depression, alcohol use, binge eating, low social
support, hypoglycemia, high levels of diabetes-specific emotional distress
[PAID], or burnout). Last, most recent hemoglobin A1C is presented using a
thermometer-style graphic with red, yellow, or green coding used to identify
the level of significant danger of blood glucose. This lab addition to the
DSCP Web version helps the patient to reflect on this important lab result and
tie it to self-care
goals.24
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Conclusion
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The Accu-Check Interview and the DSCP are of enormous value in that the
patient is engaged and involved from the very beginning in developing a
behavior change treatment plan. The Accu-Check Interview and DSCP provide
strategies to assess psychological factors and implement interventions to
assist individuals attempting to manage their diabetes.
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Acknowledgments
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I would like to acknowledge Garry Welch, PhD, director of behavioral
medicine research at Baystate Medical Center, for his generosity in sharing
the Accu-Check Interview, the PAID questionnaire, and the Diabetes Self Care
Profile, in addition to Sue Kutenplon, RN, MEd, CDE, at Emerson Hospital for
her expertise and support.
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The Diabetes Educator, Vol. 32, No. 1,
51-58 (2006)
DOI: 10.1177/0145721705285113

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